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Hi,

I thought I would post a reply as my dog Jack also suffers with the episodes you have mentioned and has done for the last 10 years. He started with them when he was about 2 and a half years old and he is now 12. The episodes are very similar to Monty's, but Jack seems to seize up more and his whole body goes rigid. He is very aware of what is happening and if he can, he will seek me out just as an episode is beginning. He can have one when resting, walking, waking up, inside, outside, when it is cold or warm, has eaten or not, etc - there seems to be no trigger. Jack has been tested for EIC and exercise-induced hyperthermia syndrome but all were clear. He has seen different vets and specialists to try to get to the bottom of the condition over the years and while some are adamant it is epilepsy, others (and myself) are equally adamant it is not.

I fully understand how upsetting it is for you to see your dog having one of these episodes, especially when you are out and about as it can leave you a bit vulnerable too, however if it offers any consolation, the episodes don't appear to have affected Jack's overall health and he hasn't suffered from any conditions directly attributed to these attacks. As he has got older, the episodes have reduced in frequency and he now has about 2 or 3 per year (he could have them as often as every 10 days).

If you search the forum for posts about Monty and paroxsymal dyskinesia, there will be lots of valuable info on this condition. It certainly helped me when I first started looking for answers to this strange collapsing condition my dog was suffering with so hopefully it will help you too!

Cheryl and Jack
 

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Hi HMitchell - sorry but I have just caught up on this thread (not been on line for a while). Monty was my boy (I sadly lost him earlier this year at the age of 14) Please let me know if I can be of help?

How is Jack doing Cheryl?
 

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Hi June,

Apologies, I hadn't seen your post as I too haven't visited the site for a while. It is good to hear from you.

Jack is doing pretty well for an old dog! He does struggle walking and we now only potter up and down the street a few times a day, but he is content with this and enjoys watching the world go by and greets his friends with the same enthusiasm he always has! He is kept comfortable with his meds and supplements and has laser therapy every week and physiotherapy every 2 weeks. He doesn't have as many of his episodes as he used to, maybe this is due to a slower pace of life but who knows!

Thank you for asking after Jack, you have always been so helpful whenever I have needed some advice so it is nice to hear from you. I hope you are keeping well x

Cheryl and Jack
 

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Hello everyone from a new member, I'm hoping this post of mine will be allowed by the admin. I am the admin of the Canine Epileptoid Cramping Syndrome Group on Facebook (link below) So If anyone has a dog(s) with CECS /PGSD concerns, or have been diagnosed by their veterinary practitioner/neurologist please join the CECS group for support and further information on ongoing official scientific research into this debilitating condition. I can't and would never give you veterinary advice, our vets must always be our first contact for any health concerns with our much-loved dog's, but I can offer comfort and a kind listening ear when needed. So please don't ever feel that you are alone
❤
Michelle x
https://www.facebook.com/groups/2877304097/about
 

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Welcome Michelle.

I understand that Prof. Ned Patterson was linking CECS with Paroxysmal Dyskinesias. Do you know of any further moves on that front? I know he was one of the leading people on this and remember him addressing a seminar held by The Border Terrier Club of America many moons ago. I was lucky enough to be able to watch a video of the seminar.
 

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I know this is an older thread, but I'm curious to hear a follow-up on everyone's dogs. My 4-year-old boy began having these sorts of spasming episodes at the age of 2, and they've been getting more frequent. Recently started him on Keppra at the advice of my vet (and because if they were true seizures and I didn't start him on medication and he died, I'd never forgive myself), but am awaiting appointment with neurologist because I have doubts. Has anyone had success with medication with this syndrome? Did the episodes start slowing down generally as the dogs got older?
 

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I really cant tell you any more than is already on here. Since June lost Monty I have lost touch with her. But things seem so much in the air. What works with one dog appears to be no help with another. All of which leads me to wonder if we are dealing with different, but similar conditions. Dont forget that only a few short years ago any dog which collapsed was considered to be epileptic, where we now know of several unrelated conditions whereby a dog can collapse.
 

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I really cant tell you any more than is already on here. Since June lost Monty I have lost touch with her. But things seem so much in the air. What works with one dog appears to be no help with another. All of which leads me to wonder if we are dealing with different, but similar conditions. Dont forget that only a few short years ago any dog which collapsed was considered to be epileptic, where we now know of several unrelated conditions whereby a dog can collapse.
Thanks for your reply, John. I agree that it is strange that there seem to be so many different (and sometimes breed-specific) iterations of this syndrome that respond to different things.
 
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