Paroxysmal Dyskinesia Research - Labradors Forums
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Old 08-09-2019, 11:33 AM   #1 (permalink)
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Default Paroxysmal Dyskinesia Research

PAROXYSMAL DYSKINESIA IN LABRADORS If you have a labrador which has been diagnosed with paroxysmal dyskinesia you may be interested to know of some new research at Edinburgh University. This is a DNA research project requiring simple cheek swabs from labradors who first experienced episodes by the age of 12 months, and whose episodes are triggered by excitement. If you have a dog fitting the criteria and would like to help with this research - please contact the researcher (Nivan). Her email address is
[email protected]
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Old 08-09-2019, 01:04 PM   #2 (permalink)
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Thankyou June.Very interesting.
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Old 09-09-2019, 08:28 PM   #3 (permalink)
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Hi June,

I'm not sure if Jack meets the criteria as I first noticed his episodes when he was around 2 years old but think I will contact the University anyway.

I hope you are keeping well.

Thanks
Cheryl and Jack
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Old 07-10-2019, 02:07 PM   #4 (permalink)
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Hi June

I have just emailed a friend of mine who lives closeby to ask her for your contact details. She has told me about Monty and his seizures (if I can use that to describe) and she is still in touch with you after her Labrador Duncan also suffered same.

I have a female Chocolate Labrador who has started having episodes too. She is 20 months old. Her first one - which I now realise on hindsight that was what it was - occurred at the end of May when she was almost 16 months old. Her second was exactly 3 months later at the end of August and then she had another yesterday. I managed to video some of yesterday. There has been a pattern - they have all occurred at the weekend (possibly coincidence) and she has been lying asleep or in the one place for a long time and jumped up quickly to go to either the bedroom to kitchen or kitchen to bedroom (my husband and I bedroom is downstairs) and then her legs have given way. (I noticed when I was searching and found this Forum that another dog had exactly same trigger - post was from 2010). All of the seizures have lasted just over a minute and been - I would assume - mild. Do you have any advice or what we can do next and what to do after she has had a seizure (on all occasions we have given her a quiet day with a short walk - unfortunately as I love walking - lots)!! The first time we did go to the vets and they gave her a check over but couldn't find anything wrong with her. Thank you for your help.
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Old 07-10-2019, 06:08 PM   #5 (permalink)
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Quote:
Originally Posted by shopgirl41 View Post
Hi June,

I'm not sure if Jack meets the criteria as I first noticed his episodes when he was around 2 years old but think I will contact the University anyway.

I hope you are keeping well.

Thanks
Cheryl and Jack
Hi Cheryl - good to hear from you - it's been a while. Sorry for the delay in responding, I've not been on the forum for a while. Certainly no harm in contacting Nivan to see if Jack fits the criteria. She is not requiring a neurologist confirmed diagnosis - as long as she can access a video clip of an access in order to show to the neurologists, and a cheek swab for DNA. I think she can be a bit flexible re age of onset. Hope Jack is dong well.
Kind regards
June
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Old 07-10-2019, 06:10 PM   #6 (permalink)
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Quote:
Originally Posted by CarolT View Post
Hi June

I have just emailed a friend of mine who lives closeby to ask her for your contact details. She has told me about Monty and his seizures (if I can use that to describe) and she is still in touch with you after her Labrador Duncan also suffered same.

I have a female Chocolate Labrador who has started having episodes too. She is 20 months old. Her first one - which I now realise on hindsight that was what it was - occurred at the end of May when she was almost 16 months old. Her second was exactly 3 months later at the end of August and then she had another yesterday. I managed to video some of yesterday. There has been a pattern - they have all occurred at the weekend (possibly coincidence) and she has been lying asleep or in the one place for a long time and jumped up quickly to go to either the bedroom to kitchen or kitchen to bedroom (my husband and I bedroom is downstairs) and then her legs have given way. (I noticed when I was searching and found this Forum that another dog had exactly same trigger - post was from 2010). All of the seizures have lasted just over a minute and been - I would assume - mild. Do you have any advice or what we can do next and what to do after she has had a seizure (on all occasions we have given her a quiet day with a short walk - unfortunately as I love walking - lots)!! The first time we did go to the vets and they gave her a check over but couldn't find anything wrong with her. Thank you for your help.
Hi Carol - as you have also sent me a private message I will get back to you also by PM.
Kind regards
June
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Old 07-10-2019, 06:18 PM   #7 (permalink)
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Thank you June - I am not very familiar with forums so had sent PM also just incase.

Many thanks.

Carol
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Old 07-10-2019, 08:25 PM   #8 (permalink)
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Hi June,

Thanks for your reply. I contacted Nivan and send sent her all my notes and videos of Jack and he has been accepted for the trial. I'm just waiting for the DNA test to arrive so I can send this off. I'm very grateful for you posting about the trial and I'm glad they can use Jack's info and DNA.

Jack is doing quite well considering all his problems. He is 13 tomorrow! His mobility has deteriorated but his health is pretty good so we just keep going!

I'll keep you updated with any news regarding the trial.

Thanks
Cheryl and Jack
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Old Yesterday, 06:55 PM   #9 (permalink)
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Good to know that Jack is going to be able to help in the search for answers regarding the condition!
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