PAROXYSMAL DYSKINESIA IN LABRADORS If you have a labrador which has been diagnosed with paroxysmal dyskinesia you may be interested to know of some new research at Edinburgh University. This is a DNA research project requiring simple cheek swabs from labradors who first experienced episodes by the age of 12 months, and whose episodes are triggered by excitement. If you have a dog fitting the criteria and would like to help with this research - please contact the researcher (Nivan). Her email address is nivan.mamak@ed.ac.uk
Hi Cheryl - good to hear from you - it's been a while. Sorry for the delay in responding, I've not been on the forum for a while. Certainly no harm in contacting Nivan to see if Jack fits the criteria. She is not requiring a neurologist confirmed diagnosis - as long as she can access a video clip of an access in order to show to the neurologists, and a cheek swab for DNA. I think she can be a bit flexible re age of onset. Hope Jack is dong well.
Kind regards
June
I have just emailed a friend of mine who lives closeby to ask her for your contact details. She has told me about Monty and his seizures (if I can use that to describe) and she is still in touch with you after her Labrador Duncan also suffered same.
I have a female Chocolate Labrador who has started having episodes too. She is 20 months old. Her first one - which I now realise on hindsight that was what it was - occurred at the end of May when she was almost 16 months old. Her second was exactly 3 months later at the end of August and then she had another yesterday. I managed to video some of yesterday. There has been a pattern - they have all occurred at the weekend (possibly coincidence) and she has been lying asleep or in the one place for a long time and jumped up quickly to go to either the bedroom to kitchen or kitchen to bedroom (my husband and I bedroom is downstairs) and then her legs have given way. (I noticed when I was searching and found this Forum that another dog had exactly same trigger - post was from 2010). All of the seizures have lasted just over a minute and been - I would assume - mild. Do you have any advice or what we can do next and what to do after she has had a seizure (on all occasions we have given her a quiet day with a short walk - unfortunately as I love walking - lots)!! The first time we did go to the vets and they gave her a check over but couldn't find anything wrong with her. Thank you for your help.
Thanks for your reply. I contacted Nivan and send sent her all my notes and videos of Jack and he has been accepted for the trial. I'm just waiting for the DNA test to arrive so I can send this off. I'm very grateful for you posting about the trial and I'm glad they can use Jack's info and DNA.
Jack is doing quite well considering all his problems. He is 13 tomorrow! His mobility has deteriorated but his health is pretty good so we just keep going!
I'll keep you updated with any news regarding the trial.
Good morning everyone
Our chocolate lab, Susie, was diagnosed with PD too, she’s had it a couple of years now but I’m a big worrier and I feel hers are becoming more regular, They used to be every 4-6 weeks with occasional cluster episodes where she would have 2 or 3 in as many days but now they seem to be 2-3 weeks and not just when she awakes quickly but also out on walks, I was wondering if anyone knew of any groups or forums where people post more regularly to share happenings / ideas etc??
I keep a diary with as much detail as I can when she has her spasms, triggers etc and just feel it may be of use to others / researchers but can’t seem to find anyone with any ongoing research!
I know it’s awful, but it reassures me to read others stories and to hear that their dogs are otherwise happy and healthy.
Any help would be greatly appreciated
Vicky
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